Stories of Patients

Mar 15, 20224 min read

The president of Greater Victoria Down Syndrome Society shares his vision for inclusive healthcare

“It is important that we value the lives of individuals with Down syndrome and other disabilities no differently than others" Paul...

Feb 19, 20223 min read

A single mother, Sulma assists her son Isaac with Bilateral Hydronephrosis

Sulma Marina Velázquez is a single mother living in Tegucigalpa, Honduras. Her newborn, Isaac David Sánchez Bonilla, was diagnosed with...

Jan 4, 20223 min read

Adelaide Nye shares her views on how to become "better patients" II

Nye emphasizes that it is vital for all of us to become "better patients.” You should arrive at your first appointment with any new...

Dec 15, 202117 min read

7 year-old Miguel Antonio ‘Little X-Man’ Medical Journey with Glut1 and Keto Diet Treatment

7 year-old Miguel Antonio ‘Little X-Man’ Medical Journey with Glut1’s Diagnosis and Keto Diet Treatment Jessica Antonio, 40 years old,...

Nov 26, 20217 min read

Stephanie Ernst's Medical Journey with Twin Anemia Polycythemia Sequences - Part 2

Stephanie knew absolutely nothing when she went into the diagnosis, but she has devoted herself to creating more resources including her...

Nov 26, 20217 min read

Stephanie Ernst's Medical Journey with Twin Anemia Polycythemia Sequences - Part 1

Stephanie Ernst is an Australian who lives in the Netherlands. Her husband is Dutch, and they moved to Australia around ten years ago...

Oct 31, 20218 min read

A patient advocate, Claire Sachs’ ongoing medical journey and view on healthcare - part 3

Part 3 - Claire’s view on healthcare Autonomy is important. For Claire, it is crucial to be fully informed about her conditions so that...

Oct 31, 20216 min read

A patient advocate, Claire Sachs’ ongoing medical journey and view on healthcare - part 2

Part 2 - Claire's reflection Every diagnosis is followed by a tough identity change. “One of the things I've been talking about lately,...

Oct 31, 20214 min read

A patient advocate, Claire Sachs’ ongoing medical journey and view on healthcare - part 1

Part 1 - Claire’s story Claire Sachs is a strong and resilient woman with a positive mindset. Her stories are truly inspiring for anyone,...

Oct 26, 20213 min read

Patient advocate, hospice volunteer and bereavement facilitator, Adelaide Nye, shares her views

Adelaide Nye has been a medical patient advocate for over 35 years, supporting adult and geriatric patients with spinal injuries, joint...

Sep 5, 20213 min read

Struggling with Corticobasal degeneration (CBD): The story of Anne Docter

Corticobasal degeneration (CBD) is a rare condition that causes the patient’s brain to become foggy and trigger the loss of basic human...

Jul 26, 20212 min read

Peggy Zuckerman talks about the importance of providing information to patients

Peggy Zuckerman, a brave, compassionate woman, is a Kidney Cancer Patient Advocate. In 2003, she was misdiagnosed for 8 months with...

Jul 26, 20216 min read

Story of A Rare Blood Cancer Patient on the West Coast

A 79-year-old woman with incurable and rare blood cancer, Multiple Myeloma, shared her medical journey. She has been on weekly...